%A Denga, Michael %A Hoffmann, Thomas %D 2023 %T The Estonian Electronic Health Record – a Prototype for Data governance in the European Health Data Space? %! The Estonian Electronic Health Record – a Prototype for Data governance in the European Health Data Space? %X <p>The Estonian Electronic Health Record (‘EEHR’) enables patients and healthcare professionals to share and use health data for treatment and health administration, but also caters to so-called secondary uses such as scientific research and development of health products – an approach in line with the EU draft regulation for a European Health Data Space of May 2022 (‘EHDS’). However, neither in the Estonian record nor in the EHDS patients have a say in the collection or storage of their data in electronic patient registers; the same is true for data retrieval for secondary use. This is in obvious contradiction to informational self-determination, which is exacerbated by indeterminate permissions and prohibitions. </p> %U https://doi.org/10.21552/ehpl/2023/1/4 %0 Journal Article %R 10.21552/ehpl/2023/1/4 %J European Health & Pharmaceutical Law Review %V 7 %N 1